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Navigating Home Care During the Pandemic

In March, Amy Carrier asked one of the two women who provided home care for her mother to stop coming to work.

Her mother, 74, has Alzheimer’s disease and lives with her in Corvallis, Ore. To protect her from the coronavirus, “it was clear that I needed to lock down my house,” said Ms. Carrier, 45, a foundation executive. She allowed one helper, who lived with only an adult daughter, to continue helping her mother bathe, take walks and play puzzles and games.

But the other aide has a household of six, including four teenagers, and was visiting other clients’ homes. “There’s too much chance of exposure,” Ms. Carrier decided. When she explained that to her employee, she said, “she totally understood, and she wanted to be home with her family, too.” At least, because Ms. Carrier hires and pays caregivers legally, the worker is receiving unemployment benefits.

Home Care Partners, a nonprofit agency serving the Washington, D.C., area, said that about 20 percent of its clients, primarily low-income older adults, had suspended their service.

Those aides who are still working face arduous conditions. “They have a higher level of risk, because they’re going into a number of different homes,” said Marla Lahat, the executive director. “They’re often traveling on public transportation, which is severely curtailed here in D.C.”

Acquiring protective equipment, for workers accustomed to hand-washing and gloves but not to masks, proved difficult and expensive. “Hospitals and nursing homes were the priorities; we weren’t,” said Ms. Lahat, who eventually had to buy sanitizer from repurposed distilleries. “It’s been totally disruptive.”

Much of the attention to the toll Covid-19 has taken on older adults has rightly focused on long-term-care facilities. Their residents and employees account for almost 40 percent of the nation’s deaths, according to an updated New York Times analysis.

But far more Americans — nearly six million, by one estimate — rely on paid home care than live in nursing homes and assisted living combined.

Already among the nation’s fastest-growing job categories, personal care and support at home can help older adults age in place — as almost all prefer, surveys repeatedly show — and prevent or delay institutionalization. (This sector, also called personal care, is distinct from home health care, which Medicare covers after hospitalization.)

Such aides — almost 2.3 million of them, according to the research nonprofit P.H.I. — help with everyday nonmedical needs like bathing, dressing and using the toilet; they may prepare meals, do light housekeeping and remind clients to take their medications.

Even when consumers pay $ 22.50 an hour (the national average, according to an annual survey by Genworth), a daily four-hour visit costs far less per month than a residential facility and may allow family caregivers to keep their jobs.

When governors issued shutdown orders across the country this spring, they exempted home care aides as essential workers. “Home care workers can’t socially distance,” said April Verrett, the president of SEIU Local 2015, which represents nearly 400,000 home care aides in California.

But as with so many other parts of the health care system, the pandemic has spotlighted weaknesses and dilemmas.

Even more than nursing home employees, home care workers are poorly paid hourly workers (average wage in 2018: $ 11.52 an hour, according to P.H.I.) and often lack health insurance; half rely on some form of public assistance.

Analyzing federal data, P.H.I. researchers found that, from 2012 to 2017, only one in five home care workers who needed time off for medical or family reasons could take paid leave.

Unsurprisingly, among the for-profit agencies and franchises that employ most home care workers — leaving aside the uncountable private hiring arrangements known as the gray market — turnover nears 70 percent annually, said Vicki Hoak, the executive director of the Home Care Association of America.

“If you don’t have the heart for this, you’ll go work in retail and get paid just as much,” she added.

Now, both workers and clients have more cause for worry.

“Home care workers are probably unknowingly involved in the transmission of Covid-19, especially when they’re not equipped with sufficient P.P.E.,” or personal protective equipment, said Dr. Nathan Stall, a geriatrician and researcher at the University of Toronto and a co-author of a recent article on home care.

Not only do many home care workers serve several clients each week, increasing their exposure, but to piece together a living, they may simultaneously work for several agencies or for nursing homes, or hold outside jobs. One aide at Home Care Partners cleans hotel rooms at night.

Those conditions increase infection risks, and not only for their frail older clients. Almost a third of home care workers, a heavily female work force, are themselves over 55, and most are black or Hispanic, groups that have proved particularly vulnerable to Covid-19.

Protective equipment has proved hard to acquire, however. With hospitals and nursing homes scrambling for supplies, “this was the forgotten sector,” Dr. Stall said.

Even when employers secure it, “how do you get equipment to 400,000 people at 400,000 work sites?” Ms. Verrett said, referring to her membership. “It’s been challenging, to say the least.”

  • Frequently Asked Questions and Advice

    Updated June 5, 2020

    • How many people have lost their jobs due to coronavirus in the U.S.?

      The unemployment rate fell to 13.3 percent in May, the Labor Department said on June 5, an unexpected improvement in the nation’s job market as hiring rebounded faster than economists expected. Economists had forecast the unemployment rate to increase to as much as 20 percent, after it hit 14.7 percent in April, which was the highest since the government began keeping official statistics after World War II. But the unemployment rate dipped instead, with employers adding 2.5 million jobs, after more than 20 million jobs were lost in April.

    • Will protests set off a second viral wave of coronavirus?

      Mass protests against police brutality that have brought thousands of people onto the streets in cities across America are raising the specter of new coronavirus outbreaks, prompting political leaders, physicians and public health experts to warn that the crowds could cause a surge in cases. While many political leaders affirmed the right of protesters to express themselves, they urged the demonstrators to wear face masks and maintain social distancing, both to protect themselves and to prevent further community spread of the virus. Some infectious disease experts were reassured by the fact that the protests were held outdoors, saying the open air settings could mitigate the risk of transmission.

    • How do we start exercising again without hurting ourselves after months of lockdown?

      Exercise researchers and physicians have some blunt advice for those of us aiming to return to regular exercise now: Start slowly and then rev up your workouts, also slowly. American adults tended to be about 12 percent less active after the stay-at-home mandates began in March than they were in January. But there are steps you can take to ease your way back into regular exercise safely. First, “start at no more than 50 percent of the exercise you were doing before Covid,” says Dr. Monica Rho, the chief of musculoskeletal medicine at the Shirley Ryan AbilityLab in Chicago. Thread in some preparatory squats, too, she advises. “When you haven’t been exercising, you lose muscle mass.” Expect some muscle twinges after these preliminary, post-lockdown sessions, especially a day or two later. But sudden or increasing pain during exercise is a clarion call to stop and return home.

    • My state is reopening. Is it safe to go out?

      States are reopening bit by bit. This means that more public spaces are available for use and more and more businesses are being allowed to open again. The federal government is largely leaving the decision up to states, and some state leaders are leaving the decision up to local authorities. Even if you aren’t being told to stay at home, it’s still a good idea to limit trips outside and your interaction with other people.

    • What’s the risk of catching coronavirus from a surface?

      Touching contaminated objects and then infecting ourselves with the germs is not typically how the virus spreads. But it can happen. A number of studies of flu, rhinovirus, coronavirus and other microbes have shown that respiratory illnesses, including the new coronavirus, can spread by touching contaminated surfaces, particularly in places like day care centers, offices and hospitals. But a long chain of events has to happen for the disease to spread that way. The best way to protect yourself from coronavirus — whether it’s surface transmission or close human contact — is still social distancing, washing your hands, not touching your face and wearing masks.

    • What are the symptoms of coronavirus?

      Common symptoms include fever, a dry cough, fatigue and difficulty breathing or shortness of breath. Some of these symptoms overlap with those of the flu, making detection difficult, but runny noses and stuffy sinuses are less common. The C.D.C. has also added chills, muscle pain, sore throat, headache and a new loss of the sense of taste or smell as symptoms to look out for. Most people fall ill five to seven days after exposure, but symptoms may appear in as few as two days or as many as 14 days.

    • How can I protect myself while flying?

      If air travel is unavoidable, there are some steps you can take to protect yourself. Most important: Wash your hands often, and stop touching your face. If possible, choose a window seat. A study from Emory University found that during flu season, the safest place to sit on a plane is by a window, as people sitting in window seats had less contact with potentially sick people. Disinfect hard surfaces. When you get to your seat and your hands are clean, use disinfecting wipes to clean the hard surfaces at your seat like the head and arm rest, the seatbelt buckle, the remote, screen, seat back pocket and the tray table. If the seat is hard and nonporous or leather or pleather, you can wipe that down, too. (Using wipes on upholstered seats could lead to a wet seat and spreading of germs rather than killing them.)

    • Should I wear a mask?

      The C.D.C. has recommended that all Americans wear cloth masks if they go out in public. This is a shift in federal guidance reflecting new concerns that the coronavirus is being spread by infected people who have no symptoms. Until now, the C.D.C., like the W.H.O., has advised that ordinary people don’t need to wear masks unless they are sick and coughing. Part of the reason was to preserve medical-grade masks for health care workers who desperately need them at a time when they are in continuously short supply. Masks don’t replace hand washing and social distancing.

    • What should I do if I feel sick?

      If you’ve been exposed to the coronavirus or think you have, and have a fever or symptoms like a cough or difficulty breathing, call a doctor. They should give you advice on whether you should be tested, how to get tested, and how to seek medical treatment without potentially infecting or exposing others.


Researchers expect the demand for home care to increase sharply as the population ages. Already, older people preparing for previously postponed elective surgery or recovering from Covid-19 will want or need care at home. These days, moreover, “a lot of people justifiably have fears of entering nursing homes,” Dr. Stall pointed out.

Recruiting aides who won’t decamp for fast-food jobs will require employers to offer higher wages and benefits like paid sick leave, perhaps through full-time positions.

Aides will also need more education — “a huge issue for this work force even before Covid,” said Dr. Madhuri Reddy, a geriatrician with Hebrew SeniorLife in Boston and a co-founder of a tech company that trains home care aides.

With no federal standards for training or licensing aides, home care operates under a hodgepodge of state requirements — or lack thereof. Thirty-five states set no requirements for home care aides, Dr. Reddy said.

“We license people who cut our hair, but not the people who care for our moms?” Ms. Hoak said. Greater professionalization could promote workers’ stature, their income and their ability to care for elderly and disabled clients.

“We don’t get the respect and help that doctors and nurses do, but we’re on the front lines, too,” said Jennifer Washington, who cares for three clients in their 60s in Oakland, Calif. (One is her mother, as California’s Medicaid-supported state program permits.)

Early in the pandemic, Ms. Washington, 43, a home care worker for 20 years and an SEIU Local 215 member, stayed home for a couple of days. Although diabetes and kidney disease increased her own vulnerability to the virus, she worried more about infecting her mother or carrying illness home to her two children.

But her clients, virtually housebound, weren’t exposed to others, she reasoned. And without her assistance with showering, grocery shopping, banking, laundry, meals and simple companionship, they would be alone; their already fragile health might suffer. “They’re kind of like family now,” she said.

So, buying her own masks and gloves, she resumed her $ 14-an-hour visits. “They needed the help,” Ms. Washington said. “They didn’t have any other support. I had to do my job and pray for the best.”

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